Today, in a New York Times blog, I published a version of this:
One remedy does not work for all - that is the wisdom coming out of these letters. Seeing a good dermatologist and soothing your skin with some cortisone and/or other substance stands at the beginning.
Leave out gluten, dairy, nuts, nightshades (tomato, bell & hot pepper, eggplant, potato) - they are, in my experience, the worst offenders. But I have seen people react to spices, artificial colorings, preservatives, even to apples. Use nothing on your skin than virgin coconut oil, aloe vera gel (best directly from the plant), and your prescription ointment. Try to avoid make-up and read the labels of your shampoo and conditioner: Balm of Peru is only one ingredient that lets rashes bloom! Take a probiotic and vitamin D, and go out into the sun as often as possible - but never to the point of reddening or burning.
Then listen to your body - to the itch? What food makes you itch? What activity? Because every body is different, and my itch is not your itch. As soon as your itch gets better, avoid the cortisone cream, and go all coconut oil.
If your body itches consistently after a certain food, eliminate it - it is hurting you. Eczema is an inflammation of your skin (often on the basis of your gut being inflamed, too). And every bit of inflammation lowers the threshold for the itch, and a new allergy.
A lot of psychological theories are floating around – that certain personalities get it, that one gets it during stress, and so on. I think it is probably the inferior food we fall for in times of stress – comfort food that is loaded with sugars, white carbs and bad fats,. And when you have a chronic disease and an extremely itchy, disfiguring rash – yes, you might seem odd to so some people …
When you have healed, try to introduce some of the eliminated foods again - very, very cautiously. Some you might have to leave out forever, or may have them only very occasionally.
Go swimming in the ocean, whenever you can! - And my heart goes out to you poor thing! Read More
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Autoimmune Diseases
July 11, 2010
In autoimmune diseases the body’s immune system turns against cells of the own body, slowing destroying them, creating havoc like thyroid problems, allergies, arthritis and muscle weakness, skin afflictions, diabetes type I, neuropathy, autism (at least some forms), fibromyalgia, kidney failure, multiple sclerosis, urticaria, psoriasis, chronic fatigue, bowel troubles – and many more.
Autoimmune diseases are on the rise – more people are suffering from them. Doctors are baffled and, on the whole, helpless. Strong medications like cortisone with myriad side-effects are employed, without getting to the root cause of autoimmune diseases.
Some researchers suspect that our modern diet plays a big role; others blame pollutants in the environment or the fact that we have much less intestinal parasites (compared with cave men) which makes the idle immune system turning against the self. Modern medical drugs (to name just one example - statins - that can cause an autoimmune muscle disease) might contribute.
Of course, I don’t have all the answers either – but these are some ideas that helped patients:
• Make sure you don’t have a gluten intolerance. Test are notoriously unreliable; a better idea is to leave out all gluten (wheat, rye, barley, oats) and see if you improve. Many people feel so much better already after a week off gluten. Others need up to a year.
• Autoimmune diseases hurt the body at different organs. They all have in common an inflammatory effect. To do away with SAD (Standard American Diet) should therefore be the most important step: No sugar, no sweeteners, no white starches, no dairy (which might be the main culprit here!), no bad fats (nothing fried and processed). Instead: vegetables, vegetables, vegetables – and herbs, legumes, a bit meat and fish (but no deli). If you are not willing to cook for yourself and take yourself out of the mainstream food insanity, my hope for your recovery is slim.
• Moderate exercise: For a minimum, go for a walk everyday. Exercise produces anti-inflammatory molecules in your body.
• Bright light: Get some light outdoors. Not to the point of burning (autoimmune patients often have photo-sensitivity and are prone to easy sunburns). But light is important. If you have dark skin, you need more light. – Vitamin D might be what is protecting. I usually don’t give supplements; going outdoors daily and eating cod liver (delicious!) once a month should do the trick.
• Herbs (don’t take them all at once; try one after the other and give it time to work):
---Resveratrol; a strong anti-oxidant. Remember, there is far more resveratrol in the green vine leaves than in red wine – and nearly none in white wine and grape juice.
---Astragalus has shown some benefit. Just know that allergies are frequent in patients with autoimmune diseases. So, if you show signs of intolerance (upset stomach, aching joints, rash, etc.), stop the herb.
---Turmeric (its main ingredient curcumin) has anti-inflammatory properties is.
---Green tea.
---Korean Gamgungtang.
---Padma28, a Tibetan formula. There are some controversies about this. Talk this through with a knowledgeable physician.
---Zyflamend, a blend of several anti-inflammatory herbs. Make sure you don't have an allergy to any of its components.
---Artemisia (vulgaris and annua) both have shown some anti-inflammatory effects.
---Olive leaf extract.
---Cordiceps, a medicinal mushroom. – Eating mushrooms generally has a good effect on the immune system. Just never eat them raw (they could cause cancer): Always cook mushrooms!
---Alfalfa sprouts.
---Gluscosamine, while not an herb in the strict sense, has shown anti-inflammatory promise.
---Bupleurum, a Chinese medicinal plant.
• Be careful with vaccinations. A link between shots and autoimmune disease is suspected by some researchers. That does not mean you should avoid all vaccinations; just stick to the essential ones. Discuss this with your physician – who hopefully has an open ear for alternatives. The link between vaccines and autoimmune disease might come from the suppressing of the normal function of the body, namely fighting viruses off; or might be a function of certain additives in vaccines like mercury, aluminum and squalene.
• Selenium might be missing in your diet (Brazil nuts have the highest amount of selenium, but most nuts have some; seafoods are more moderate sources of selenium). As you might have noticed, I am no friend of supplements: minerals (and vitamins) from a bottle are not the same, and have even been proven to be harmful by recent studies. – With nuts always stay aware that you might develop an allergy at any time.
• Add some good anti-inflammatory fish oil capsules (you should not belch up a fishy taste!) daily.
• Help your intestines with probiotics. The bowels might be at the root of autoimmune diseases: A chronically inflamed bowel (“Leaky Gut Syndrome”) leads to inflammation in other parts of your body.
• One study showed that calorie restriction might decrease inflammation. I would not aim for weight loss per se; eating a fresh diet might lead to weight loss anyway. But a one-day vegetable broth fast per week (see an earlier blog entry here) might be a good idea. – Interestingly, one study showed that fasting during infectious fevers reduced the risk of developing consequent autoimmune disease.
• Don’t try this at home … but nicotine seems to protect from autoimmune disease. So does cannabis (which is still illegal!).
If you want to know which of all the above ideas are most important – probably these: NO DAIRY, NO GLUTEN! Read More
Poison Ivy Story
July 1, 2010
When we first moved to Boston, we went on a walk into the woods. I found a little vine with reddish stems and three leaves. I never had seen anything so beautiful and modest. Therefore I unearthed it, roots and all, and planted it in a pot on our roof.
A few days later, my husband developed a palm-sized inflamed red patch on his right buttock. Then I got some bizarre formations with blisters on my arms – and from there, the rash went everywhere.
First we thought we had bedbugs. We pulled the bed apart and sprayed everything. We cleaned and vacuumed our place (was about time!). But the lesions became more.
At work, I showed my arms to colleagues, and drew a blank (!). Finally, an ER doc took one look and said (you guessed it): “Poison ivy.” Of course, I had never encountered poison ivy (Toxicodendron radicans) - there is none in all of Europe.
But despite all out efforts, our rashes and itches did not go away. Weeks later, I consulted the ER doc again. He quizzed me – but we seemed to have done all the right moves. Only, the lesions were still there. He looked at me hard and asked: “You are not eating cashews every day, are you?”
That was exactly what we were doing – every morning in our muesli. Cashews and poison ivy (and mangoes) are in the same botanical family, Anacardiaceae (I talked about that devious family already in connection with back pain), and eating cashews daily kept the poison ivy rash blooming. The rash-producing ingredient is urushiol. Most people are sensitive to urushiol.
Here is what one can do against poison ivy (and poison oak, poison sumac):
• Don’t touch your face and eyes!
• Stop eating cashews and mangoes until all lesions are well healed.
• Wash with soap or a commercial anti-poison-ivy product (they are petroleum-based) all exposed and affected areas twice daily initially, later once a day until no new lesions crop up anymore.
• One prescription suggested using only cold water because warm water might disperse the poisonous oil even more. As much as I am a fan of cold water, there are no studies about this, and I would think that the bodily warmth will spread the oil anyway. But cold water won’t hurt, and it will relieve the itch.
• For more itch relief try the inside jelly of an aloe plant (any aloe will do), or Calamine lotion. I use tea tree oil for about everything (ask my husband!), and I would probably dab it on the rash for itch relief – but I have no scientific proof that it works. Another unproven remedy is jewelweed – but if I were out in the woods and it grew nearby, I would break a stem and apply its juice. Can’t hurt.
• Wash all your clothing and, if you already slept in your bed, your sheets.
• If the rash spreads into your face or, worse, near your eyes, see a physician. You need cortisone immediately because poison ivy in the eyes can lead to blindness.
• Don’t ever burn poison ivy – it can lead to fatal lung reactions. Pull poison ivy with gloved hands and dispose of it in plastic bags. Wash gloves and tools. Often shoes and pets carry the sticky resin.
Poison ivy plants look very variable - it took me years to comfortably identify them. Better stay away from anything reddish and three-leaved! Read More
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